Opportunity Information: Apply for CDC RFA DD 24 0083
This CDC funding opportunity (CDC RFA DD 24 0083) supports a multi-site surveillance effort focused on persistent tic disorders (PTD), including Tourette syndrome (TS), in people ages 6 to 24. The core goal is to build a clearer, data-driven picture of the real-world public health burden associated with these conditions by systematically documenting outcomes in children, adolescents, and young adults. In practical terms, CDC is looking to fund organizations that can reliably identify individuals with PTD/TS, collect standardized information from them, analyze what they find, and then share results in ways that can guide public health education and outreach for individuals with tic disorders and their families.
The emphasis is on applicants that already have the infrastructure to do this kind of work, especially access to a clinic-based population of patients with a current PTD/TS diagnosis within the 6 to 24 age range. Applicants also need demonstrated expertise in recognizing and confirming PTD/TS, plus the operational ability to run survey-based data collection at scale, manage data securely, conduct analysis, and communicate findings. The surveillance is meant to go beyond simply counting cases; it is intended to describe outcomes and lived impacts, including priority burden areas specifically called out by CDC such as costs, the transition from pediatric to adult health care, suicidality, and co-occurring conditions.
Because this is structured as a cooperative agreement, recipients should expect active collaboration with CDC rather than a hands-off grant. Funded sites will work with CDC and other awardees to agree on common measures and define priority outcomes, develop a shared survey and surveillance protocol that can be implemented consistently across locations, and use a coordinated approach to handling and sharing data. Sites will be expected to collect data locally and then provide de-identified datasets to CDC, enabling combined multi-site analyses. Recipients will also participate in collaborative analysis, summarizing results across sites, and disseminating findings so the results can be translated into practical education and outreach activities that improve health and well-being.
The application is document-intensive and has strict responsiveness requirements. Submissions must include a table of contents, project abstract, and a project narrative that includes a work plan, along with a budget narrative. Applicants must also provide letters of support, CVs or resumes, organizational charts, and a copy of the organization’s indirect cost rate agreement. A data management plan is required and must demonstrate secure handling and storage of data, including assurances that information will be maintained on restricted and/or password-protected systems accessible only to authorized surveillance staff. Missing required elements will cause the application to be labeled nonresponsive and removed from further review.
Eligibility is broad and includes many organization types: state, county, and local governments; special district governments; independent school districts; public and private institutions of higher education; federally recognized tribal governments; nonprofits with or without 501(c)(3) status (excluding universities where applicable); for-profit organizations (including small businesses); and unrestricted applicants. The opportunity is run by the Centers for Disease Control and Prevention, specifically within NCBDDD, and falls under CFDA 93.073 (health). CDC anticipates making about three awards, with an award ceiling of $750,000; any application requesting more than $750,000 is automatically considered nonresponsive and will not be reviewed. The original closing date listed for applications is April 15, 2024, and the opportunity was created on February 15, 2024.Apply for CDC RFA DD 24 0083
- The Centers for Disease Control - NCBDDD in the health sector is offering a public funding opportunity titled "Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.073.
- This funding opportunity was created on 2024-02-15.
- Applicants must submit their applications by 2024-04-15. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $750,000.00 in funding.
- The number of recipients for this funding is limited to 3 candidate(s).
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal governments (Federally recognized), Nonprofits having a 501 (c) (3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501 (c) (3) status with the IRS, other than institutions of higher education, Private institutions of higher education, For-profit organizations other than small businesses, Small businesses, Unrestricted.
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Frequently Asked Questions (FAQ) - CDC RFA DD 24 0083 (Persistent Tic Disorders / Tourette Syndrome Surveillance)
What is CDC RFA DD 24 0083 trying to fund?
This funding opportunity supports a multi-site surveillance effort focused on persistent tic disorders (PTD), including Tourette syndrome (TS), in people ages 6 to 24. The goal is to build a clearer, data-driven picture of the real-world public health burden by systematically documenting outcomes in children, adolescents, and young adults.
Who is the funder and which CDC program is running this?
The opportunity is run by the Centers for Disease Control and Prevention (CDC), within the National Center on Birth Defects and Developmental Disabilities (NCBDDD). It falls under CFDA 93.073 (health).
What age group does the surveillance focus on?
The surveillance targets individuals ages 6 to 24 who have a current diagnosis of PTD and/or Tourette syndrome.
What conditions are included under the focus of this opportunity?
The focus is on persistent tic disorders (PTD), including Tourette syndrome (TS).
What is the overall purpose of the surveillance work?
The purpose is to go beyond counting cases and instead describe outcomes and lived impacts, producing information that can guide public health education and outreach for individuals with tic disorders and their families.
What kinds of outcomes or burden areas is CDC specifically interested in?
CDC specifically calls out several priority burden areas, including costs, the transition from pediatric to adult health care, suicidality, and co-occurring conditions.
What kinds of organizations is CDC looking to fund?
CDC emphasizes applicants that already have the infrastructure to conduct this type of surveillance, especially organizations with access to a clinic-based population of patients ages 6 to 24 who have a current PTD/TS diagnosis.
What capabilities do applicants need to demonstrate?
Applicants need demonstrated expertise in recognizing and confirming PTD/TS, plus the operational ability to run survey-based data collection at scale, manage data securely, conduct analysis, and communicate findings.
Is this grant only about identifying cases of PTD/TS?
No. The surveillance is intended to go beyond case counting and document outcomes and real-world impacts, including the burden areas CDC highlights.
What does it mean that this is a cooperative agreement?
As a cooperative agreement, recipients should expect active collaboration with CDC rather than a hands-off grant. Funded sites will work with CDC and other awardees on common measures, priority outcomes, a shared survey, and a standardized surveillance protocol that can be implemented consistently across locations.
Will sites be working together across locations?
Yes. The project is described as a multi-site effort where funded sites coordinate with CDC and other awardees to align measures, protocols, and approaches to data handling and sharing.
What is expected regarding survey tools or surveillance protocols?
Funded sites will work with CDC and other awardees to develop a shared survey and surveillance protocol and implement it consistently across sites.
How will data be handled across the multi-site effort?
Sites are expected to collect data locally and provide de-identified datasets to CDC so CDC can conduct combined multi-site analyses. Sites will also participate in collaborative analysis and summarizing results across sites.
Does the opportunity require de-identification of data before sharing with CDC?
Yes. The expectation described is that sites will provide de-identified datasets to CDC to enable combined analyses.
What are the expectations for dissemination and use of results?
Recipients are expected to disseminate findings and translate results into practical education and outreach activities that improve health and well-being for individuals with tic disorders and their families.
What makes an application "nonresponsive"?
The application has strict responsiveness requirements. Missing required elements will cause the application to be labeled nonresponsive and removed from further review. Also, any application requesting more than the $750,000 award ceiling is automatically considered nonresponsive and will not be reviewed.
What is the award ceiling for this opportunity?
The award ceiling is $750,000. Applications requesting more than $750,000 are automatically considered nonresponsive and will not be reviewed.
How many awards does CDC anticipate making?
CDC anticipates making about three awards.
Who is eligible to apply?
Eligibility is broad and includes: state, county, and local governments; special district governments; independent school districts; public and private institutions of higher education; federally recognized tribal governments; nonprofits with or without 501(c)(3) status (excluding universities where applicable); for-profit organizations (including small businesses); and unrestricted applicants.
What are the required components of the application package?
Submissions must include a table of contents, a project abstract, and a project narrative that includes a work plan, along with a budget narrative. Applicants must also provide letters of support, CVs or resumes, organizational charts, and a copy of the organization’s indirect cost rate agreement.
Is a data management plan required?
Yes. A data management plan is required and must demonstrate secure handling and storage of data.
What security assurances are expected in the data management plan?
The plan must include assurances that information will be maintained on restricted and/or password-protected systems and will be accessible only to authorized surveillance staff.
What is the application due date listed for this opportunity?
The original closing date listed is April 15, 2024.
When was this opportunity created?
The opportunity was created on February 15, 2024.
What is the intended practical impact of funding this surveillance work?
The intent is to generate consistent, multi-site information on outcomes and burden so findings can guide public health education and outreach and ultimately improve health and well-being for people with tic disorders and their families.
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